Sharing stories, changing attitudes – Monica’s story
Whenever and wherever I can, I talk to people about dementia and ask them to talk more openly about how it impacts them, their loved ones or others in our community.
It might not seem like much, but I know that this can be a crucial step to building a more dementia friendly NZ.
My own journey started with my grandmother’s diagnosis more than 10 years ago.
For my grandfather, it was impossible that the brain could fail in that way. Despite being a highly educated man, the idea that his wife had Alzheimer’s disease was too scary to admit.
The fact that he initially refused the diagnosis tells me just how important awareness, support, a friendly community, and family carers are when dealing with dementia in the best way possible.
Originally from Italy, I moved to New Zealand six years ago with my husband. I have always been involved in the healthcare industry in one way or another.
At the moment, I am completing my studies to become an occupational therapist, but I have also been a support worker and healthcare assistant.
When I first arrived in Aotearoa New Zealand, I began searching online for ways to volunteer and support those living with dementia.
That’s where I came across Alzheimers NZ, and the Dementia Friends programme.
I am one of more than 3,000 Kiwis who want to help people living with dementia; whether it’s thinking about how we communicate, wearing the Dementia Friends badge or wristband, offering help, dropping in for a cuppa, or staying in touch.
My experience with my grandmother has definitely shaped me. It was one of the most important experiences of my life.
I learned that sharing my experiences helped me, my family and others too – and that’s what I also want to raise awareness of; sharing.
Sharing is so important. It helps to fight against taboo and stigma. It is important for the community to spread the word. We all know that dementia is a reality and we need to be ready to deal with it together.
I hope people’s attitudes will change in the future – most of us know someone with dementia, it so common now. So I’m sure the attitude will change, in fact I think it has already begun to change.
Monica Cugnolio
Click here to become a Dementia Friend