As dementia progresses, the person with dementia will gradually become more dependent on others for all their care. Most people in the later stages of dementia will need full nursing care and are often in a residential care facility, while some will continue to be cared for at home.
Knowing what to expect can help everyone – including the person with dementia – to prepare for what’s coming. Any stage of dementia, from diagnosis through to the later stages, has its special moments but also distressing times and this can be particularly challenging and stressful.
Remember that you are not alone – help is only a phone call away. Contact your local organisation here or call 0800 004 001.
End of Life Choice Act
The End of Life Choice Act comes into force in New Zealand on the 7th November 2021. You can find information on the Health Navigator NZ website, or if you have any questions, speak to your GP or health professional.
The End of Life Choice Act gives persons who have a terminal illness and who meet certain criteria the option of lawfully requesting medical assistance to end their lives. The Act establishes a lawful process for assisting those who are eligible to exercise that option.
Alzheimers NZ respects and supports the right of every person to make their own decision in relation to the Act.
Dementia is a progressive illness and receiving a diagnosis can be very distressing. Support is available to help people with dementia throughout their dementia journey, helping them to live as well as possible. And as dementia progresses good support from our health services, including palliative care when that is required, will continue to support health and wellbeing.
Assisted dying is a sensitive topic. For support with grief, anxiety, distress or mental wellbeing, you can call or text 1737 to talk with a trained counsellor for free, 24 hours a day, 7 days a week.
Booklet: The later stages of dementia A guide for people with dementia and their family/whānau
This booklet is designed to provide information about what to expect in the last stage of dementia. It highlights some issues that may be useful to consider, including what happens as the end of life nears and after death has occurred.